ada yang pernah denger tentang dia?
seorang penderita neuromuscular sejak lahir. dan dia meninggal tahun lalu, di usianya yang ke-13.
Apa yang lo bayangin tentang seorang anak cacat yang hampir seumur hidupnya di kursi roda dan pakai beberapa tabung dan alat untuk membantunya bernapas?
Dalam 13 tahun hidupnya, Mattie menulis 5 buah buku puisi. Salah satunya berjudul Heartsongs (mungkin ada yang udah pernah baca?). Jadi juru bicara di yayasan neuromuscular, dan seringkali bicara di depan publik.
What makes him so special?
for me, he's special because he's so alive.
mungkin hidupnya hanya 13 tahun, tapi dia memilih menjalani 13 tahun itu dengan bahagia dan berbuat banyak untuk orang lain.
padahal, seandainya dia menjalani 13 tahun itu dengan menangisi kondisi badannya dan ga nglakuin apa2, siapa juga yang mau nyalahin dia?
overall, he choosed to 'live'.
dia begitu dekat dengan kematian, tapi itu membuat dia jadi menghargai kehidupan.
dia bisa mati kapan aja, dan itu yang membuat dia ga mau menyia-nyiakan waktunya di dunia.
berikut gue kutip dari website nya mattie:
Q: Do you ever get angry or scared about your disease or dying?
Mattie: Of course I get angry and scared. I am very human. Some people think I am always brave. I try to be, but I cry like the next person sometimes. I am needle phobic and pain phobic, so that doesn't help. But even if I get upset, or think, "I can't do this anymore," I get myself together and pray or play or talk with my mom or a close friend, and I get beyond that tough time. I might say, "Why me?" But then I say, "Why not me? Better me than a little baby, or a kid who doesn't have strength or support." I am very blessed to have God and my mom so involved in my life. I am also lucky because I have a lot of great support from my doctors and MDA friends, and from all the people who write to me and tell me how my words have made a difference in their lives. I am so lucky that I get to see the difference. Everyone makes a difference in somebody's life. Everyone. It's just that not everyone gets the chance to realize that difference in this life. So my life is very difficult, and sometimes painful, but very full and blessed.
have you ever feel that your life is a gift?
it is.
